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Cystic Fibrosis

  • By Meabh Doolan · Ireland, Europe

 

Cystic Fibrosis

Main aim of the charity

To help aid research funds and increase the life expectancy for those suffering with the illness CF.

How the employee got involved and why

One of my dear friends past away on Christmas Day 2005 from Cystic Fibrosis, she was only 18. Her Brother unfortunately passed away from the same illness in March of this year. Cystic fibrosis (CF) is a genetic disorder that affects mostly the lungs. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections.

What work does the employee do for charity?

On Sunday the 16th September, my friend Catherine and I will walk from Howth Head in Co Dublin to Bray Head in Co Wicklow Ireland which is a total of 24miles (36 Kilometres). We aim to raise 500euro in sponsorship to this worthy charity. This will be the second time we have done this event for Cystic Fibrosis.

What impact would winning have on the charity?

It was stated in the Irish Times that: as of 2015, Ireland had 1,219 people registered with CF with a median age of 19, making it the country with the highest incidence of the disorder per head of population. The HSE (Health, Safety & Environment body in Ireland) had recently established a National Clinical Care Programme for Cystic Fibrosis which is looking at all aspects of the treatment of patients with CF in Ireland including appropriate ratios of services and staffing to patients. Sponsorship to the National Clinical care can continue with our help through sponsorship.

What impact would winning have on the employee?

To know that we are receiving additional support for this event and charity would be amazing! The life expectancy of someone who has CF is not long, with additional funds to support research we can hopefully add to this.

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