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Medicine · 01:53

ALS Foundation Orange County Chapter

  • By Kristin Spaberg · United States Of America, Americas

 

Kristin Spaberg

Main aim of the charity

The main aim of the ALS Foundation is to create a world without ALS. Their mission is to discover treatments and a cure for ALS, and to serve, advocate for and empower people affected by ALS to live their lives to the fullest. The ALS Association (National Office and the Orange County Chapter) operates under a shared mission: to help people living with Amyotrophic Lateral Sclerosis and to leave no stone unturned in search for the cure. They work together to accomplish their mission. The Orange County Chapter focuses primarily on helping local patients and families live with ALS while the National Office focuses primarily on research and advocacy. The Chapter supports the National Office through revenue sharing and research contributions. The National Office supports the Chapters by providing up-to-date information and materials. The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. The ALS Association covers all the bases — research, patient and community services, public education, and advocacy — in providing help and hope to those facing the disease.

How the employee got involved and why

Henry Bennett was a 17 year DHL employee based out of SEE. Henry was diagnosed with ALS / Lou Gehrig’s Disease in 2017 and passed away on 2 June 2018. We wanted to do something to honor Henry’s memory and bring awareness to the terrible disease that took the life of our beloved friend and colleague.

What work does the employee do for charity?

We have held our 2nd Annual Charity Golf Tournament in Henry’s name and partnered with ALS Association Orange County Chapter, who provided giveaways and valuable information on ALS and what work is being done to stop this dreadful disease. In 2018 we raised $3100 and this year we raised $4000. This money will go to provide services to others that are also battling ALS. The golf tournament has been approved by the USMB to be an annual tournament to benefit the ALS Foundation. In addition, we also have a team of employees participating for a second year in the Walk to Defeat ALS being held in November.

 
 
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