Main aim of the charity

The main objective is to improve the quality of life of the affected person and their family. To inform in all areas (health, educational, legal, etc.) To promote clinical research to improve the symptoms of the disease. We carry out language and autonomy re-education programs. Psychological Support Family respite and camps for those affected, Training courses for those affected and their families about the disease Guides with information about the disease

How the employee got involved and why

I started in 2015 because my daughter was born with the disease.

What work does the employee do for charity

We collaborate with the association by making donations, organizing events such a charity meals and doing social awareness work.