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Running for research Prader Willi Syndrome
Main aim of the charity
Doctor Jennifer Miller from Florida University ihas discovered a drug to control hyperphafia (lack of feeling full), this is the worse symptom of this syndrome.
How the employee got involved and why
Because last year I was mother of a baby affected by Prader Syndrome little my baby, my second son, Javier. It was a dream being able to help him and all Prader Willi community.
What work does the employee do for charity
I have organized a padel tourney in order to donate the funds to Running for Research. This foundation tries to improve the life quality of people affected by Prader Willi Syndrome, a very complex genetic disorder. The tourney was a success and more than 100 people participated. This will be the first of a lot.